Primary caregivers' challenges related to caring for children living with HIV in a semi-rural area in South Africa

Abstract

The increased number of orphans due to HIV, as well as the increased number of children living with HIV, increases the burden for primary caregivers in the community. This study focussed on the experiences of primary caregivers of children living with HIV in a semi-rural area of South Africa. The aim of this article was to describe the challenges experienced by the primary caregivers. A qualitative study with eight purposively sampled primary caregivers was done. Data were collected by conducting unstructured individual interviews and analysed using Tesch's method. The identified challenges included not knowing the causes of the children's frequent illnesses, coming to terms with the HIV positive diagnosis, ensuring treatment adherence, as well as the prevention and management of episodes of illness. Additional challenges included the prevention of infection of family members and of the primary caregivers and financial challenges. A holistic comprehensive health service, addressing primary caregivers' challenges, is required.