Misconceptions Associated with Children Living with Albinism: Evidence from the Gutu District, Zimbabwe

Abstract

Misconceptions surrounding the genetic condition of albinism persist in many parts of sub-Saharan Africa, including Zimbabwe. Studies on albinism have been carried out in different contexts around the globe, but little is known so far about the effects of the misconceptions of albinism in the rural communities of Zimbabwe. This study examines the effects of the misconceptions of albinism in the Gutu District of Zimbabwe. Twenty-five participants were interviewed, consisting of caregivers and children living with albinism in the Gutu District. In-depth interviews were used to gather data concerning their experiences of the misconceptions associated with albinism, the ways these misconceptions have affected them and the ways in which they attempt to mitigate these effects. Results of the study show that, although there are initiatives and programmes advocated by various stakeholders for children living with albinism, the misconceptions are still escalating. Furthermore, the study reveals stigma and discrimination as the major effects of the misconceptions in the lives of children living with albinism. In conclusion, the study recommends the establishment of a community-based protection model for people living with albinism, which integrates all stakeholders involved in mitigating the challenges that emerge from the misconceptions of albinism in Zimbabwe.